Transplant Resources / General Information
If you are new to the transplant journey, have just learned that you have been listed, or have questions, now is the time to call upon the many resources and information that are available to you at no charge. Thanks to a generous gift from the William G. McGowan Charitable Fund and American Century Investments, Gift of Life offers a variety of videos and online resources.
A Surgeons Perspective
How to Help Your Surgeon
Dr. Sean Kumer, Transplant Surgeon, Center for Transplantation, University of Kansas Health System
The Importance of Compliance and Adherence
Dr. Jameson Forster, Transplant Surgeon, Saint Luke’s Health System
A Transplant Surgeon Speaks from the Heart
Dr. Michael Borkon, Heart Transplant Surgeon, Saint Luke’s Health System
Video Resources for Transplant Recipients and Caregivers
The Importance of Family, Friends & Support
Heart Recipient David Jeter and his wife Lydia
The Important Role of Caregivers
Marilee Clites, Medical Professional,The Transplant Institute at Research Medical Center
Need a Checklist?
Your medical team should always be your first resource for medical advice and questions regarding your transplant journey. Kidney recipient Dan Coronado made his own checklist so he would be prepared for each visit with his doctors and transplant team. He has offered to share this list as an example of questions you may wish to consider. Do you have other tips to add? Email them to Andyd@giftdonor.org and we’ll begin a log to help the next patient!
A New Life – Dan Coronado
Understanding Depression, Coping and Emotional Support
Recognizing and Understanding Depression
Peggy McGinnis, The Transplant Institute at Research Medical Center & Gift of Life Transplant Mentor Advisory Committee Member
Pediatric Transplant Support
Success is a Team Effort
The Humanity of the Gift of Life
Victor Wilson is a Chaplain at Menorah & Shawnee Mission Medical Centers
Living Kidney Donation
Encouragement Through Parents Care
The Transition to Adult Care
Dr. Bradley Warady, Chief Nephrologist, Children’s Mercy Hospital
KC Area Transplant Hospitals and Programs
Center for Transplantation at the University of Kansas Health System
(Heart, Liver, Kidney, Pancreas, Bone Marrow)
Children’s Mercy Hospitals and Clinics
Saint Luke’s Health System
The Transplant Institute at Research Medical Center
American Transplant Foundation
The American Transplant Foundation helps provide financial assistance to the most vulnerable transplant patients and living donors by reimbursing them for lost wages after the surgery, and providing access to lifesaving medications. Through its Patient Assistance Program and 1+1=LIFE Mentorship Program, ATF supports patients in 46 states with a specific focus on Colorado.
First Hand Foundation
First Hand Foundation is an organization that provides funding for individual children who need assistance with clinical necessities: surgery, medication, therapy, medical equipment and travel related care.
Safety Net and Mental Health Resources
Kansas City Area Mental and Health Services
The Mid-America Regional Council’s Kansas City Healthcare Initiative offers the Health Resource Guide, a guide to safety net health services in greater Kansas City. Topics include Affordable Care Act enrollment information, safety net clinics, mental health services directory, prescription assistance and additional resources.
Offers counseling, support, shelter, food and related information through a number of facilities in the Kansas City Metro area. Call 913-328-4600 or the 24-hour Emergency Line: 913-788-4200.
National Institute for Alcohol Abuse and Alcoholism
Advance Care Planning and Health Care Directives
The Center for Practical Bioethics Caring Conversation Guide
The Center for Practical Bioethics has graciously offered access to their valuable resource library for your consideration. Caring Conversations® is designed to guide you, your family and your friends through the process of advance care planning. Each copy of Caring Conversations includes a healthcare directive form and a durable power of attorney for healthcare form.
Helpful Links to General Topics
United Network of Organ Sharing (UNOS)
Our mission is to advance organ availability and transplantation by uniting and supporting our communities for the benefit of patients through education, technology and policy development.
Scientific Registry of Transplant Recipients
SRTR responsibilities include designing and carrying out rigorous scientific analyses of data and disseminating information to the transplant community, including transplant programs, organ procurement organizations, policy makers, transplant professionals, transplant recipients, organ donors and donor families, and the general public.
How to Medically Qualify for Disability Benefits After an Organ Transplant
Organ transplants can be a very scary procedure to go through. Especially after dealing with the physical, mental, and emotional strain, the last thing you want to worry about before or after is its financial burden.
For those who have had (or will be having) an organ transplant, Social Security disability benefits may be able to help. Continue below to learn how your transplant may qualify and how you can begin preparing for your application.
Starting the Application
The Social Security website can be used to start your application whenever you are ready. If you require assistance when filling out your application, Outreach Team at Disability Benefits Help provides information about disability benefits and the application process. To learn more, please visit their website at http://www.disability-benefits-help.org/ or by contacting them at firstname.lastname@example.org.
Lung Transplant Information
Web MD – Liver transplant
Web MD – Kidney transplant
Web MD – Heart transplant
Web MD – Lung transplant
Web MD Pancreas transplant
Heartland Kidney Program
Missouri Kidney Program
National Kidney Foundation
American Liver Foundation
Saving Sight (Formerly Heartland Lion’s Eye Bank)
Grief Support KC
Gladstone and Kansas City locations
1500 Meadow Lake Parkway Suite 200
Kansas City, Missouri 64114
Hospice House – Olathe Medical Center
Church of the Resurrection
Thursday night program 5:30 dinner, 6:30 program
Grief Support (Loss of a Child)
Providing grief support after the death of a child
National Office: 877.969.0010
Local Office: 816.941.3904
Other Transplant Centers
Mayo Clinic Transplant
Stanford Medical Center
University of Pittsburgh
Barnes Jewish Hospital, St. Louis
Children’s Hospital, St. Louis
Johns Hopkins Medical Center
Nebraska Medical Center