Transplant Resources / General Information

If you are new to the transplant journey, have just learned that you have been listed, or have questions, now is the time to call upon the many resources and information that are available to you at no charge. Thanks to a generous gift from the William G. McGowan Charitable Fund and American Century Investments, Gift of Life offers a variety of videos and online resources.

A Surgeons Perspective

How to Help Your Surgeon
Dr. Sean Kumer, Transplant Surgeon, Center for Transplantation, University of Kansas Health System

The Importance of Compliance and Adherence
Dr. Jameson Forster, Transplant Surgeon, Saint Luke’s Hospital

Video Resources for Transplant Recipients and Caregivers

The Importance of Family, Friends & Support
Heart Recipient David Jeter and his wife Lydia

The Important Role of Caregivers
Marilee Clites, Medical Professional,The Transplant Institute at Research Medical Center

Need a Checklist?

Your medical team should always be your first resource for medical advice and questions regarding your transplant journey. Kidney recipient Dan Coronado made his own checklist so he would be prepared for each visit with his doctors and transplant team. He has offered to share this list as an example of questions you may wish to consider. Do you have other tips to add? Email them to Andyd@giftdonor.org and we’ll begin a log to help the next patient!

Kidney Recipient
A New Life – Dan Coronado

Understanding Depression, Coping and Emotional Support

Recognizing and Understanding Depression
Peggy McGinnis, The Transplant Institute at Research Medical Center & Gift of Life Transplant Mentor Advisory Committee Member

Pediatric Transplant Support
Success is a Team Effort

The Humanity of the Gift of Life
Victor Wilson is a Chaplain at Menorah & Shawnee Mission Medical Centers

Pediatric Insight

Living Kidney Donation
Encouragement Through Parents Care

The Transition to Adult Care
Dr. Bradley Warady, Chief Nephrologist, Children’s Mercy Hospital

KC Area Transplant Hospitals and Programs

Center for Transplantation at the University of Kansas Health System
(Heart, Liver, Kidney, Pancreas, Bone Marrow)
http://www.kumed.com/transplant

Children’s Mercy Hospitals and Clinics
Liver
http://www.childrensmercy.org/Clinics_and_Services/Clinics_and_Departments/Liver_and_Intestinal_Transplant/
Kidney
http://www.childrensmercy.org/Clinics_and_Services/Clinics_and_Departments/Kidney_Transplant/
Heart
http://www.childrensmercy.org/heart/

Saint Luke’s Health System
Liver: www.saintlukeshealthsystem.org/services/liver-transplant
Heart: http://www.saintlukeshealthsystem.org/services/heart-transplant-0
Kidney: http://www.saintlukeshealthsystem.org/services/kidney-transplant

The Transplant Institute at Research Medical Center
www.researchmedicalcenter.com/service/transplant-institute

Financial Assistance

American Transplant Foundation
The American Transplant Foundation helps provide financial assistance to the most vulnerable transplant patients and living donors by reimbursing them for lost wages after the surgery, and providing access to lifesaving medications. Through its Patient Assistance Program and 1+1=LIFE Mentorship Program, ATF supports patients in 46 states with a specific focus on Colorado.
http://www.americantransplantfoundation.org/about-transplant/resources-and-links/5408-2/

First Hand Foundation
First Hand Foundation is an organization that provides funding for individual children who need assistance with clinical necessities: surgery, medication, therapy, medical equipment and travel related care.
www.firsthandfoundation.org

Safety Net and Mental Health Resources

Kansas City Area Mental and Health Services
The Mid-America Regional Council’s Kansas City Healthcare Initiative offers the Health Resource Guide, a guide to safety net health services in greater Kansas City. Topics include Affordable Care Act enrollment information, safety net clinics, mental health services directory, prescription assistance and additional resources.
http://www.kchealthresource.org/print.aspx

Wyandot Center
Offers counseling, support, shelter, food and related information through a number of facilities in the Kansas City Metro area. Call 913-328-4600 or the 24-hour Emergency Line: 913-788-4200.
http://www.wyandocenter.org

Web MD: http://www.webmd.com/a-to-z-guides/life-after-transplant-coping-emotionally

National Institute for Alcohol Abuse and Alcoholism
http://www.niaaa.nih.gov

Advance Care Planning and Health Care Directives

The Center for Practical Bioethics Caring Conversation Guide
The Center for Practical Bioethics has graciously offered access to their valuable resource library for your consideration. Caring Conversations® is designed to guide you, your family and your friends through the process of advance care planning. Each copy of Caring Conversations includes a healthcare directive form and a durable power of attorney for healthcare form.
https://www.practicalbioethics.org/resources/caring-conversations

Helpful Links to General Topics

United Network of Organ Sharing (UNOS)
Our mission is to advance organ availability and transplantation by uniting and supporting our communities for the benefit of patients through education, technology and policy development.
http://www.unos.org

Scientific Registry of Transplant Recipients
SRTR responsibilities include designing and carrying out rigorous scientific analyses of data and disseminating information to the transplant community, including transplant programs, organ procurement organizations, policy makers, transplant professionals, transplant recipients, organ donors and donor families, and the general public.
http://www.srtr.org

How to Medically Qualify for Disability Benefits After an Organ Transplant
Organ transplants can be a very scary procedure to go through. Especially after dealing with the physical, mental, and emotional strain, the last thing you want to worry about before or after is its financial burden.

For those who have had (or will be having) an organ transplant, Social Security disability benefits may be able to help. Continue below to learn how your transplant may qualify and how you can begin preparing for your application.

Starting the Application
The Social Security website can be used to start your application whenever you are ready. If you require assistance when filling out your application, Outreach Team at Disability Benefits Help provides information about disability benefits and the application process. To learn more, please visit their website at http://www.disability-benefits-help.org/ or by contacting them at help@ssd-help.org.

Lung Transplant Information
http://2ndwind.org/transplantation/financing_transplantation/advocacy.html

Web MD – Liver transplant
http://www.webmd.com/digestive-disorders/digestive-diseases-liver-transplantation?page=2

Web MD – Kidney transplant
http://www.webmd.com/a-to-z-guides/kidney-transplant-20666

Web MD – Heart transplant
http://www.webmd.com/heart-disease/heart-transplant-15646

Web MD – Lung transplant
http://www.webmd.com/lung/lung-transplant-surgery

Web MD Pancreas transplant
http://www.webmd.com/digestive-disorders/pancreas-transplant

TRIO – Transplant Recipients International Organization
http://www.trioweb.org
Kansas City Chapter: http://kctrio.org/

Heartland Kidney Program
http://www.heartlandkidney.org

Missouri Kidney Program
http://som.missouri.edu/mokp/

PKD Foundation
http://www.pkdcure.org/

National Kidney Foundation
http://www.kidney.org

American Liver Foundation
http://www.liverfoundation.org

Saving Sight (Formerly Heartland Lion’s Eye Bank)
https://saving-sight.org/

Grief Support KC

Crossroads Hospice
Gladstone and Kansas City locations
888.603.6673
https://www.crossroadshospice.com/grief-support/about-the-grief-recovery-program/

KC Hospice
1500 Meadow Lake Parkway Suite 200
Kansas City, Missouri 64114
816.363.2600
http://kchospice.org/

Hospice House – Olathe Medical Center
http://olathehealth.org/Hospitals-And-Clinics/Hospice-House-at-Olathe-Medical-Park#.VcubBfVhBc

Church of the Resurrection
Thursday night program  5:30 dinner, 6:30 program
913.897.0120
http://www.cor.org/

Grief Support (Loss of a Child)

Compassionate Friends
Providing grief support after the death of a child
National Office: 877.969.0010
Local Office: 816.941.3904
http://www.compassionatefriends.org/Find_Support/Chapters/Chapter_Locator.aspx?zip

Other Transplant Centers

Mayo Clinic Transplant
http://www.mayoclinic.org/tests-procedures/liver-transplant/basics/definition/prc-20014076

Stanford Medical Center
https://stanfordhealthcare.org/medical-clinics/liver-transplant-program.html

University of Pittsburgh
http://www.upmc.com/Services/transplant/abdominal-transplants/liver/Pages/default.aspx

Barnes Jewish Hospital, St. Louis
Kidney: http://www.barnesjewish.org/kidney-transplant
Liver: http://www.barnesjewish.org/liver-transplant
Heart: http://www.barnesjewish.org/heart-transplant?ibp-adgroup=transplant&gclid=CKny0pH4vMYCFRAxaQodiocGaw
Lung: http://www.barnesjewish.org/lung-transplant
Pancreas: http://www.barnesjewish.org/kidney-pancreas-transplant

Children’s Hospital, St. Louis
www.stlouischildrens.org

Johns Hopkins Medical Center
http://www.hopkinsmedicine.org

Nebraska Medical Center
http://www.nebraskamed.com/transplant/index.aspx

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